Showing posts with label multiple system atrophy. Show all posts
Showing posts with label multiple system atrophy. Show all posts

Thursday, October 19, 2023

Saying goodbye to Gisele

My longtime friend since childhood, Gisele, passed away yesterday. She was sixty-six years old and had suffered with a degenerative neurological disease called multiple system atrophy for the past nine years. She was hospitalized this past weekend for Covid but in her weakened state due to her illness, was not able to recover from it. Since her diagnosis in 2014, we have tried to talk every Sunday, and for the most part, have managed to do so. We talked a lot about her situation and her feelings, my feelings and the feelings of friends and family. We talked about life, work, retirement, and traveling. She loved to travel and probably would have bought an apartment in Paris if she hadn't become ill. Her father was born in France and she had a special affinity for the country. 

Before she became ill, we traveled together and had fun together, with trips to Paris and Dublin among some of the more memorable trips. When her illness reached the point where it impaired her ability to drive, I would drive her around Westchester and we would revisit the haunts of our youth. She was an incredibly honest and open person and I learned a lot from her. Candid is the word I would use to describe her. She did not waste time, either hers or other's; her life and the lives of others mattered. She valued others. She chose her words and her advice carefully, but if something needed to be said, she could say it. I've known her for most of my life. We grew up together in the same neighborhood; she lived right around the corner. When we were teenagers, we hung out at her house after dinner during the summer months, talking and laughing and listening to WPLJ, the radio station with all the major pop and rock hits of the day. Her parents were welcoming and hospitable, much like mine. Her grandmother (father's mother) lived with them and had a black dog named Fluffy, who would go crazy with happiness when he met you at the door. Her father had a great sense of humor, which sometimes annoyed Gisele if his joking got too close for comfort. When I moved to Norway, he would sometimes greet me with 'How is it up there in Iceland'? He knew perfectly well where I lived, but he made me laugh, and she did too. How many times we talked about boyfriends, how many times we met in Manhattan to go to the Metropolitan Museum of Art, after which we would go to the museum restaurant to eat dessert and drink coffee. She and I had differing views about going to discos; I loved to go and dance, she did not. I know I dragged her to some discos a few times before she decided she didn't want to go anymore. As we got older, we talked about work problems (she was an elementary school teacher, I was a researcher). It was interesting that despite different work environments, many of the problems were the same--idiotic bosses, backbiting, gossiping colleagues. She never married or had children, mostly because she never met the right man with whom to have a family. We had our differences, but during a friendship that spanned over fifty years, one might expect that. She was honest about her own failings, even though it took some time to admit to them, as it does for us all. At her core she was a seeker of spiritual things, and I have some wonderful books that she gave me through the years that attest to that. I will miss her for always.  






My eulogy for Gisele: 

It’s been a long journey for Gisele, a journey into the mostly unknown. We who loved her joined her on that journey, offering support as best we could. Multiple system atrophy. MSA. No one had ever heard about it before or knew anything about it. But Gisele dealt with this new event in her life the way she dealt with most things—with courage and strength. She was brave and honest with herself and others. She was not afraid to talk about her illness, to research it, or to try different ways of tackling it. She knew that no ready cure for it existed, but she discovered that she could slow its progression if she made certain dietary adjustments, and she did and it worked for some time.

Today we have come to the end of one journey and the beginning of another. Gisele had faith, she prayed, and she believed in a heaven that existed for the faithful. During the past year, she told me that she was ready to meet God, and I know that she is with God and her parents now. There is so much I could say about her, about her love and loyalty and caring for others, about her sense of humor (inherited from her father) and her laugh. She was not her illness and she was adamant about that. She didn’t want to focus on what the illness had taken away from her, even though she grieved each loss while trying to accept them. But she lived in the present and chose not to focus on the past. She has a forever place in my heart.

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